I don't have the time right now to do this justice, so I'll just lay out the story over the last year or so and let you, faithful reader, follow the thread. This is an amazing story.
This is an amazing initiative at the Montreal Neurological Institute and Hospital at McGill University in Montreal.
From the press release:
McGill University announces a transformative $20 million donation to the Montreal Neurological Institute and Hospital
Tanenbaum Open Science Institute to open new horizons and accelerate discovery in neuroscience
The Prime Minister of Canada, Justin Trudeau, was present today at the Montreal Neurological Institute and Hospital (MNI) for the announcement of an important donation of $20 million by the Larry and Judy Tanenbaum family. This transformative gift will help to establish the Tanenbaum Open Science Institute, a bold initiative that will facilitate the sharing of neuroscience findings worldwide to accelerate the discovery of leading edge therapeutics to treat patients suffering from neurological diseases.
‟Today, we take an important step forward in opening up new horizons in neuroscience research and discovery,” said Mr. Larry Tanenbaum. ‟Our digital world provides for unprecedented opportunities to leverage advances in technology to the benefit of science. That is what we are celebrating here today: the transformation of research, the removal of barriers, the breaking of silos and, most of all, the courage of researchers to put patients and progress ahead of all other considerations.”
Neuroscience has reached a new frontier, and advances in technology now allow scientists to better understand the brain and all its complexities in ways that were previously deemed impossible. The sharing of research findings amongst scientists is critical, not only due to the sheer scale of data involved, but also because diseases of the brain and the nervous system are amongst the most compelling unmet medical needs of our time.
Neurological diseases, mental illnesses, addictions, and brain and spinal cord injuries directly impact 1 in 3 Canadians, representing approximately 11 million people across the country.
“As internationally-recognized leaders in the field of brain research, we are uniquely placed to deliver on this ambitious initiative and reinforce our reputation as an institution that drives innovation, discovery and advanced patient care,” said Dr. Guy Rouleau, Director of the Montreal Neurological Institute and Hospital and Chair of McGill University’s Department of Neurology and Neurosurgery. “Part of the Tanenbaum family’s donation will be used to incentivize other Canadian researchers and institutions to adopt an Open Science model, thus strengthening the network of like-minded institutes working in this field.”
‟We thank the Tanenbaum family for this generous investment, which allows us to further accelerate progress to meet the needs of patients,ˮ said Professor Suzanne Fortier, Principal and Vice-Chancellor of McGill University. ‟The Open Science movement is gaining momentum, with global initiatives underway in the European Union, Japan and the United States. The Montreal Neurological Institute and Hospital will become the first academic institute worldwide to fully embrace Open Science. The Tanenbaum Open Science Institute will set the global standard for this movement and position McGill, Montreal, Quebec and Canada at the forefront of scientific progress.ˮ
The Montreal Neurological Institute and Hospital
The Montreal Neurological Institute and Hospital – The Neuro – is a world-leading destination for brain research and advanced patient care. Since its founding in 1934 by renowned neurosurgeon Dr. Wilder Penfield, The Neuro has grown to be the largest specialized neuroscience research and clinical center in Canada, and one of the largest in the world. The seamless integration of research, patient care, and training of the world’s top minds make The Neuro uniquely positioned to have a significant impact on the understanding and treatment of nervous system disorders. The Montreal Neurological Institute is a McGill University research and teaching institute. The Montreal Neurological Hospital is part of the Neuroscience Mission of the McGill University Health Centre. For more information, please visit www.theneuro.ca
About McGill University
McGill University is one of Canada’s top institutions of higher learning and one of the leading universities in the world. With students coming to McGill from some 150 countries, its student body is the most internationally diverse of any research-intensive university in the country. Its 11 faculties and 11 professional schools offer more than 300 programs of study to some 40,000 graduate, undergraduate and continuing studies students. McGill ranks 1st in Canada among medical-doctoral universities (Maclean’s) and 24th in the world (QS World University Rankings).
Source: The Montreal Neurological Institute and Hospital, McGill University
Contact: Shawn Hayward
Organization: Montreal Neurological Institute
Office Phone: 514-398-3376
Secondary Contact Information
Contact: Cynthia Lee
Organization: McGill University
Secondary Email: firstname.lastname@example.org
Office Phone: 514-398-6754
And their commitment to open science is described here. While it doesn't focus so much on research outputs such as articles (Which I guess will mostly be covered under the Tri-Agency Open Access Policy on Publications), I'm very pleased to see code, data sharing and no IP protection emphasized. On the other hand, item number five in the list below is a partial escape clause for researchers (and others) at the Neuro who aren't quite on board. Which is understandable. Let's just hope that over time they are able to shift their culture such that researchers at least won't feel the need to decline participation in open science initiatives.
A Ten-Year Mission
Within the next ten years, we aim to transform many brain disorders from chronic or terminal to treatable, or even curable, conditions. The main objective of the Tanenbaum Open Science Institute is to accelerate the discovery of novel therapeutics to treat patients suffering from neurological disease.
We want to reduce the human and socio-economic burden of psychiatric and neurological illnesses, and improve the mental health, quality of life, and productivity of people around the world.
Open Science at the Montreal Neurological Institute is based on five guiding principles:
1. Share scientific data and resources
MNI researchers will render all positive and negative numerical data, models used, data sources, reagents, algorithms, software and other scientific resources publicly available no later than the publication date of the first article that relies on this data or resource.
2. Open external research partnerships
All data and scientific resources generated through research partnerships – whether with commercial, philanthropic, or public sectors – are to be released on the same basis as set out in Principle 1.
3. Share research participants' contributions and protect their rights
The Neuro Open Science Clinical, Biological, Imaging, and Genetic data (NeurO CBIG) Repository will maximize the long-term value of contributions made by research participants and the scientific resources created by MNI researchers and their collaborators. In the conduct of the NeurO CBIG, the MNI recognizes the primacy of safeguarding the dignity and privacy of patient-participants, and respecting the rights and duties owed them through the informed consent process.
4. Do not file patents
Subject to patient confidentiality and informed consent given, neither the MNI nor its researchers in their capacity as employees or consultants of the McGill- MNI unit will obtain patent protection or assert data protection rights in respect of any of their research.
5. Respect academic autonomy
The MNI supports the autonomy of its stakeholders, including but not limited to researchers, staff, trainees and patients, through recognizing their right to decline to participate in research and associated activities under an OS framework. However, the MNI will not support activities that compromise the previously outlined OS principles.
Andre Picard puts it nicely in context in today's Globe and Mail, In Montreal, a wee opening in the closed world of science research.
Is the accepted way of doing science bad for science?
That question is the driving force behind the bold new “Open Science” initiative at the Montreal Neurological Institute.
Currently, governments invest a lot of money in health research, almost all of it at universities and labs associated with teaching hospitals.
We expect scientists to discover stuff such as drugs and technology and then commercialize those findings so there is a return on investment on the public funds invested. In recent years, there has been tremendous pressure on scientists to demonstrate immediate and lucrative results, and enormous scorn when they don’t.
The Open Science philosophy holds that it is the latter. Open Science has four fundamental goals: 1) Transparency in experimental methodology and collection of data, 2) Public availability of scientific data, 3) Public accessibility and transparency and scientific communication, and 4) Using Web-based tools to facilitate collaboration.
At The Neuro, all findings will be patent-free and freely accessible to other scientists worldwide – making it the first academic institute in the world to fully embrace open science. The Neuro can afford this experiment thanks to a $20-million (Canadian) donation from the family of Larry Tanenbaum, the philanthropist and chairman of Maple Leaf Sports and Entertainment Ltd. As a savvy businessman, he is convinced that openness will accelerate research and discovery. “What we are celebrating here today is the transformation of research, the removal of barriers, the breaking of silos and, most of all, the courage of researchers to put patients and progress ahead of all other considerations,” Mr. Tanenbaum said at Friday’s announcement.
Bravo. Let's hope this isn't the last Canadian research institute to make such a public commitment to open science. In fact, I'd like to challenge all of us to help our own institutions travel along this path. Different disciplines and different institutions (and even different units with different institutions) will have their own path, but it's important to start the journey and make the commitment to find that path.
And, as promised, here's a bit of background reading on the Neuro's journey to open science over the last year or so.
As usual, if I've missed anything significant, let me know in the comments.